Family's son with rare disorder brings community together - KLTV.com-Tyler, Longview, Jacksonville, Texas | ETX News

Family's son with rare disorder brings community together

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A Henderson County couple shared their story of their child's rare disorder. It's a story of hope and resolve and why they're staying Brant Strong.

Just a few weeks ago, Josh and Holly Duncan learned their 10-mont-old son, Brant, has an extremely rare disorder that eventually will cause Brant's body to shut down.

That diagnosis led to the Facebook page: Brant Strong

It's a place where the community is coming together to help the family through a difficult time.

Brant has type one GM-1 Gangliosidosis, which is the most severe.

Brant is at home, but has to constantly have an oxygen tube and eats through a feeding tube. Holly says she's decided to leave her job to care of him.

"I don't think he'll be leaving my side for a while," said Holly.

It is something, she says along with medical bills, is putting her family in a financial bind. Family, friends, and even strangers aren't willing to let that happen.

Holly's best friend created Brant Strong. It's a page where those who are affected by Brant's story can set up fundraiser's, make donations, and pray for Brant's healing.

Holly and Josh say they hope for a miracle each day.

Family and friends have set up a trust fund called "Brant Strong" at the Ohio Valley Bank for anyone who would like to donate.

-Donations are also being accepted through PayPal on Brant Strong Facebook

-Bake Sale tomorrow at the Warehouse of Worship on 7th street in Henderson

*1 to 4 pm

*All proceeds go to Brant and his family

-Brant Strong Christmas Ham Sale

*Sunday, December 22nd from 1 to 3 pm

*People can purchase a semi-boneless ham anytime by contacting Katie Puttman at (270) 577-2332 or Lauren Gentry at (270) 748-3975. They will give people a ticket that they'll need in order to pick up their ham.

*All hams will be bbq'd and smoked at Atkinson Park by Tim Gentry on the 22nd; people can pick them up there that day

*Hams cost $45 – cash or check payable to Katie Puttman

-Evansville Icemen Brant Strong/Dickerson Family Giveback Night

*Friday January 24th at 7:15 at the Ford Center

*$5 of every ticket sold through the IceMen goes back to the families of Brant Duncan and Haley Dickerson

-T-Shirts are currently on sale – bracelets are in the works

*Order form for t-shirts can be found on Brant Strong Facebook page

*T-shirts are $15

*Print and fill out order form and send it, along with cash or check, to Rachel O'Neal at 902 Marywood Drive, Henderson, KY 42420

-Online Scentsy fundraiser

*Visit Bayleigh.scentsy.us to order

*All proceeds donated to Brant and his family

*For questions, contact Bayleigh Craig at (270) 577-8608

-Koozies on sale – they say "#BrantStrong"

*Canned koozies are $8, water bottle koozies are $9

*90 percent of the proceeds go towards medical expenses for Brant

*To purchase, contact Shawna Goins by emailing her at scook0066@kctcs.edu

-Origami Owl fundraiser Sunday, November 24 at Fusion Dance on Green Street in Henderson at 6 p.m.

*All proceeds go directly to Holly, Josh and Brant

*All orders are guaranteed to be here before Christmas

*To check out Origami Owl, visit http://tiffanyatkison.origamiowl.com/

Copyright 2013 WFIE. All rights reserved.

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