Community holding rodeo to help 5-month-old boy with rare diseas - - Tyler, Longview, Jacksonville |ETX News

Community holding rodeo to help 5-month-old boy with rare disease


A benefit rodeo is taking place to raise money for five-month-old Riley Moss, who has been diagnosed with a rare immune system disease called HLH.

The condition affects one in every 50,000 children.

Doctors first thought that Riley had the flu but he wasn't getting better after taking medication. Doctors then sent Riley to the Children's Hospital in Dallas, where he was then diagnosed with HLH.

"Riley started having some medical issues and they ran a bunch of tests and found out he has HLH which is like a rare form of blood cancer, and so he's going through chemotherapy and they are looking for a bone marrow match now," said Anderia DeSpain, a friend of the Moss family.


Riley will need a bone marrow transplant and doctors will be treating him similarly to how they treat leukemia patients.

Now family friends like DeSpain are putting together a benefit rodeo for the Moss family. It's an event open for anyone to come.

"It's $30 per event and it's the same for the bull riders and barrel racers. And then, of course, the concession stand, all the stuff for the concession stand has been donated and all the raffle items have been donated. Everything that goes from the concession stand and the raffle items is all going towards the Moss family," said DeSpain.

The family is hopeful the rodeo will help with expenses and they appreciate the community's support.

"The expenses are so much right now, going back and forth to Dallas and the medications and of course the doctors and all of that. It's just the love and support has helped more than anything," said Donald Moss, Riley's grandfather.

Riley was rushed to the hospital Wednesday night for high blood pressure that is weakening his heart.


Riley's grandfather will represent his grandson, who will still be in the hospital during the rodeo event.

"It's a very good honor to me. I just want to be there for my grandson and support him and all in every way possible," said Donald.

The benefit rodeo will start at 5:30 p.m. and will be taking place at Union Ridge Arena in Ewell, Texas, on Saturday, June 22nd.

They will have "Ride for Riley" t-shirts for sale and will be accepting donations for the Moss family.

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